tag:blogger.com,1999:blog-2067557850118525183.post6810461991006472029..comments2023-05-17T08:30:37.177-04:00Comments on butterfly lights: Guinea Pigchristy hhttp://www.blogger.com/profile/08292419631673189105noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2067557850118525183.post-87821371724979114242009-08-04T21:21:16.593-04:002009-08-04T21:21:16.593-04:00I think this is a win-win situation, Christina. I...I think this is a win-win situation, Christina. I'd say go for it -- you've done the research and it really sounds like you are talking yourself into it!!!<br /><br />Go, girl!Jessicahttps://www.blogger.com/profile/13861091931226983930noreply@blogger.comtag:blogger.com,1999:blog-2067557850118525183.post-18035570669129759802009-08-04T20:03:30.932-04:002009-08-04T20:03:30.932-04:00Oh and a note about side effects - the high dose R...Oh and a note about side effects - the high dose RAI can possibly cause nausea/vomiting, salivary gland problems (if it concentrates there), headaches, loss of taste, radiation sickness issues like peeling of the skin in your mouth, and even sterilization... at 30yrs, not married, hoping to have kids yet, knowing unfertilized eggs don't freeze well... its the last one that has me very interested in the smaller dose.christy hhttps://www.blogger.com/profile/08292419631673189105noreply@blogger.comtag:blogger.com,1999:blog-2067557850118525183.post-81124121209811842912009-08-04T20:00:23.294-04:002009-08-04T20:00:23.294-04:00Thyroid cancer is typically slow growing and my su...Thyroid cancer is typically slow growing and my surgeon thinks it has been contained to the thyroid gland... of course with the TT coming up we will know more and they may do some sentinel lymph node biopsies too to confirm. So that wouldn't be a huge issue with the 2 RAI doses - not super fun though.<br /><br />Insurance - Michigan is one of a few states that mandates insurances pay for clinical trials in phase 2 & 3 at certain medical centers. This trial is phase 2 and the MD location is the NIH which is on the approved list :) Not sure the DC location is though so we would have to push for the Bethesda one.christy hhttps://www.blogger.com/profile/08292419631673189105noreply@blogger.comtag:blogger.com,1999:blog-2067557850118525183.post-10450317667796960502009-08-04T18:20:31.304-04:002009-08-04T18:20:31.304-04:00It seems to me that this is one of the times where...It seems to me that this is one of the times where a clinical trial makes sense. You get the medicine you already need, a dose that will likely lessen the side effects, and something else that may make it even more effective. If you get the placebo, at least there's a perfectly viable backup plan.<br /><br />The only real issue is time. You have to assume in these things that you're going to get the placebo, which means you need to count on getting that second dose of RAI, which of course means a longer time in treatment and a longer time for the cancer to spread. If your cancer is slow-growing enough, then the time issue may not be a big deal. If you think you can handle the potential double-shot of RAI, then there really isn't a downside here.<br /><br />Oh wait, thought of a potential other issue. Does your insurance cover experimental treatments?Anonymoushttps://www.blogger.com/profile/12454344844909747137noreply@blogger.comtag:blogger.com,1999:blog-2067557850118525183.post-85297698561809714882009-08-04T13:57:56.176-04:002009-08-04T13:57:56.176-04:00That's a good point. The only placebo possibl...That's a good point. The only placebo possible in this study is the Lithium which isn't necessary for the cancer treatment, they are just hoping to prove it enhances it. The RAI I would get would still kill off the cancer cells just maybe not as effective as a super high dose, but I can get a second dose if needed.christy hhttps://www.blogger.com/profile/08292419631673189105noreply@blogger.comtag:blogger.com,1999:blog-2067557850118525183.post-29345454848931834502009-08-04T13:31:21.971-04:002009-08-04T13:31:21.971-04:00What if you get the placebo? That is what scares ...What if you get the placebo? That is what scares me about those studies! But I am also a chicken shit. :-)Lindsey Wolfehttps://www.blogger.com/profile/01384962555640309443noreply@blogger.com